Author: Anmmaree Watharow

The Dual Sensory Impairment-Deafblindness National Conference

DSI Project orange and blue logo showing touch signing and braille of the letters D S I

Filling in the gaps and joining the dots The Dual Sensory Impairment Project is delighted to announce the upcoming National Dual Sensory Impairment-Deafblindness Conference, taking place this November at the University of Sydney.We are co-convening this important awareness-raising, experience-sharing and skills-building event with the Dual Sensory Impairment Fellowship at Macquarie University. Support and sponsorship have also been provided by: This …

Deafblind Australia Annual General Meeting

By Annmaree Watharow and Skye Wallace We have travelled to Perth to do a number of multi-purpose activities: Interviews Skye and I spent time with amazing consumers to get their insights on what deafblind or dual sensory impaired people and their families need and want. This information is then used to inform our partnerships, research programs and awareness raising and …

Save Sight Institute Family Day – Part 3: Social-Haptic Communication Workshop Notes

Annmaree Watharow and Susannah McNally People have been using on-body touch signals for centuries. Most people use touch and gestures, for example, to signify support (patting on the back), and love (holding hands, kissing). People with disability and their families have sometimes created individual systems when sight, hearing or speaking senses are not working well enough for them to ‘know …

Save Sight Institute Family Day – Part 1: Transitions and Super Teams

Annmaree Watharow and Susannah McNally We are here at the Save Sight Institute Family Day as part of our mission with the Dual Sensory Impairment Project to consolidate partnerships and raise awareness of the issues impacting people and families living with sensory impairments. Our brief today is twofold: a presentation of managing transitions from children’s health care services to adult …

A Report from The United Kingdom

Usher syndrome is the most common cause of deafblindness in people under 65 years of age, accounting for around fifty percent. In most cases, Usher syndrome is the combination of congenital deafness and acquired low vision that degenerates over time. It may be associated with balance disorders and cataracts. The hearing loss is usually stable, but subtypes have been identified …

A Report from Spain

I am in Spain in a town by the Balearic Sea. Not for recreation but for intense work on a new core set for deafblindness in the International Classification of Function (ICF). There’s a beach outside, a waterslide too, and even a roller coaster. But we are inside focused on deciding and debating what features of deafblindness or dual sensory …

Book Review – True Biz

True Biz Book Cover

Sara Novic, Penguin Random House, 2022 pp ISBN 9780593241509 Through a blend of fiction and creative non-fiction Sara Novic has crafted an urgent and compelling lament of the demise of culturally important Deaf education In America. The fiction takes readers into the pleasures and pains of Deaf communities and outliers, whilst the non-fiction unwraps some mysteries of American sign language …

Book Review – Disrupting the academy with lived experience-led knowledge

Disrupting the Academy with Lived Experience-Led Knowledge book cover

Maree Higgins and Caroline Lenette (eds) Policy Press, Bristol, 2024 pp 194ISBN: 9781447366348 (pbk) Expert-knowers write chapters in this work, challenging academic norms, while providing potent examples of lived experience-led research. The epistemic justice framing in which lived experiences are prioritised and honoured, entwines with social justice. As Estelle Keerthana Ramaswamy notes: ‘Authors should declare their positionality in their research and writing …