The Dual Sensory Impairment Project held an annual Christmas party in mid-December! We celebrated 2024’s achievements, discussed challenges, solutions and big plans for 2025 projects, chatted about our holiday fun and ate a delicious array of food! Our chief cheerleader Suzie was absent, although we mustn’t feel sorry for this as she was in France enjoying her beautiful new apartment, …
Category: General
Save Sight Institute Family Day – Part 3: Social-Haptic Communication Workshop Notes
Annmaree Watharow and Susannah McNally People have been using on-body touch signals for centuries. Most people use touch and gestures, for example, to signify support (patting on the back), and love (holding hands, kissing). People with disability and their families have sometimes created individual systems when sight, hearing or speaking senses are not working well enough for them to ‘know …
Save Sight Institute Family Day – Part 2: Being Prepared for Hospital
Annmaree Watharow and Susannah McNally So, we have our super team in place (see part one). What else do we need to have a better health or hospital experience? We need lots of systemic and attitudinal changes, but we can help ourselves (and our health caregivers) by being prepared. In order to be better prepared for hospital and healthcare encounters, …
Save Sight Institute Family Day – Part 1: Transitions and Super Teams
Annmaree Watharow and Susannah McNally We are here at the Save Sight Institute Family Day as part of our mission with the Dual Sensory Impairment Project to consolidate partnerships and raise awareness of the issues impacting people and families living with sensory impairments. Our brief today is twofold: a presentation of managing transitions from children’s health care services to adult …
A Report from The United Kingdom
Usher syndrome is the most common cause of deafblindness in people under 65 years of age, accounting for around fifty percent. In most cases, Usher syndrome is the combination of congenital deafness and acquired low vision that degenerates over time. It may be associated with balance disorders and cataracts. The hearing loss is usually stable, but subtypes have been identified …
International Book Launch
Lived Places Publishing has recently released Dual Sensory Impairment and the Older Person on their website. Older people with combined hearing loss and low vision, also known as dual sensory impairment living in residential aged care facilities are a forgotten group. Hearing loss, vision loss, loneliness and a rapidly ageing population are global concerns. But older people with dual sensory …
Empowering Older Adults with Dual Sensory Impairment: A Wellbeing Initiative
By Diana Tang Imagine trying to navigate the world without the ability to hear or see clearly. For many older adults with dual sensory impairment (DSI), this is their daily reality. DSI, the combination of both hearing and vision loss, is a growing challenge among aging populations, often leading to social isolation, frustration, and decreased quality of life. As a …
Seeing things that aren’t there
Last week Annmaree and Suzie travelled to Newcastle to talk on “seeing things that aren’t there” or visual hallucinations, often called Charles Bonnet syndrome. “Seeing things that aren’t there”, that no one else can see and that are called visual hallucinations. “Seeing things that aren’t there” is very common in people with problems seeing well. Deafblind people “see things that …
Being Included in Museum Visits
Travelling can be a complicated experience when you have combined hearing loss and low vision. In particular, going to galleries, museums and exhibitions can often be an excluding experience: not enough accessible information, few visual descriptions, scarce large print materials and frequently, noisy, crowded surrounds. Sometimes I trail behind my husband feeling bored. Sometimes I drink tea in the café …
Occupational Therapy Students Lecture
We sometimes fail to realise that teaching is a gift given and one that is received too. As part of the Master of Occupational Therapy Course, Annmaree, Suzanne and Susannah went to give a lecture on dual sensory impairment using lived experience, research and verbatim testimony. We covered key issues: Annmaree’s journey with deafness and then blindness and the funny …