SAVE THE DATE: National Conference – Filling in the Gaps and Joining the Dots

Save the Date for the First National Dual Sensory Impairment – Deafblindness Conference: November 27th – 28th, 2025 This two-day conference aims to fill in the gaps in our data, knowledge and services. Co-Convened by The University Of Sydney and Macquarie UniversityIn partnership with SensesWA & others ABSTRACT SUBMISSIONS WILL OPEN 1ST FEBRUARY 2025 For sponsorship enquiries and other queries, …

Deafblind Australia Annual General Meeting

By Annmaree Watharow and Skye Wallace We have travelled to Perth to do a number of multi-purpose activities: Interviews Skye and I spent time with amazing consumers to get their insights on what deafblind or dual sensory impaired people and their families need and want. This information is then used to inform our partnerships, research programs and awareness raising and …

Save Sight Institute Family Day – Part 3: Social-Haptic Communication Workshop Notes

Annmaree Watharow and Susannah McNally People have been using on-body touch signals for centuries. Most people use touch and gestures, for example, to signify support (patting on the back), and love (holding hands, kissing). People with disability and their families have sometimes created individual systems when sight, hearing or speaking senses are not working well enough for them to ‘know …

Save Sight Institute Family Day – Part 1: Transitions and Super Teams

Annmaree Watharow and Susannah McNally We are here at the Save Sight Institute Family Day as part of our mission with the Dual Sensory Impairment Project to consolidate partnerships and raise awareness of the issues impacting people and families living with sensory impairments. Our brief today is twofold: a presentation of managing transitions from children’s health care services to adult …

A Report from The United Kingdom

Usher syndrome is the most common cause of deafblindness in people under 65 years of age, accounting for around fifty percent. In most cases, Usher syndrome is the combination of congenital deafness and acquired low vision that degenerates over time. It may be associated with balance disorders and cataracts. The hearing loss is usually stable, but subtypes have been identified …

A Report from Spain

I am in Spain in a town by the Balearic Sea. Not for recreation but for intense work on a new core set for deafblindness in the International Classification of Function (ICF). There’s a beach outside, a waterslide too, and even a roller coaster. But we are inside focused on deciding and debating what features of deafblindness or dual sensory …

Seeing things that aren’t there

Ghost image of a person not there

Last week Annmaree and Suzie travelled to Newcastle to talk on “seeing things that aren’t there” or visual hallucinations, often called Charles Bonnet syndrome.  “Seeing things that aren’t there”, that no one else can see and that are called visual hallucinations. “Seeing things that aren’t there” is very common in people with problems seeing well. Deafblind people “see things that …