Dual Sensory Impairment Project
Capturing the hidden epidemic
Dual Sensory Impairment Project
Capturing the hidden epidemic
Annmaree Watharow and Susannah McNally So, we have our super team in place (see part one). What else do we need to have a better health or hospital experience? We need lots of systemic and attitudinal changes, but we can help ourselves (and our health caregivers) by being prepared. In order to be better prepared for hospital and healthcare encounters, …
Annmaree Watharow and Susannah McNally We are here at the Save Sight Institute Family Day as part of our mission with the Dual Sensory Impairment Project to consolidate partnerships and raise awareness of the issues impacting people and families living with sensory impairments. Our brief today is twofold: a presentation of managing transitions from children’s health care services to adult …
We are developing a consumer and carer handbook for older people living with dual sensory impairment. Please fill out our survey to help up gain insights that will inform the design of a consumer and carers handbook for people with combined vision and hearing loss. We are seeking input directly from people with combined hearing and vision loss (or dual …
Usher syndrome is the most common cause of deafblindness in people under 65 years of age, accounting for around fifty percent. In most cases, Usher syndrome is the combination of congenital deafness and acquired low vision that degenerates over time. It may be associated with balance disorders and cataracts. The hearing loss is usually stable, but subtypes have been identified …
I am in Spain in a town by the Balearic Sea. Not for recreation but for intense work on a new core set for deafblindness in the International Classification of Function (ICF). There’s a beach outside, a waterslide too, and even a roller coaster. But we are inside focused on deciding and debating what features of deafblindness or dual sensory …
Lived Places Publishing has recently released Dual Sensory Impairment and the Older Person on their website. Older people with combined hearing loss and low vision, also known as dual sensory impairment living in residential aged care facilities are a forgotten group. Hearing loss, vision loss, loneliness and a rapidly ageing population are global concerns. But older people with dual sensory …
Sara Novic, Penguin Random House, 2022 pp ISBN 9780593241509 Through a blend of fiction and creative non-fiction Sara Novic has crafted an urgent and compelling lament of the demise of culturally important Deaf education In America. The fiction takes readers into the pleasures and pains of Deaf communities and outliers, whilst the non-fiction unwraps some mysteries of American sign language …
Maree Higgins and Caroline Lenette (eds) Policy Press, Bristol, 2024 pp 194ISBN: 9781447366348 (pbk) Expert-knowers write chapters in this work, challenging academic norms, while providing potent examples of lived experience-led research. The epistemic justice framing in which lived experiences are prioritised and honoured, entwines with social justice. As Estelle Keerthana Ramaswamy notes: ‘Authors should declare their positionality in their research and writing …
By Diana Tang Imagine trying to navigate the world without the ability to hear or see clearly. For many older adults with dual sensory impairment (DSI), this is their daily reality. DSI, the combination of both hearing and vision loss, is a growing challenge among aging populations, often leading to social isolation, frustration, and decreased quality of life. As a …
Last week Annmaree and Suzie travelled to Newcastle to talk on “seeing things that aren’t there” or visual hallucinations, often called Charles Bonnet syndrome. “Seeing things that aren’t there”, that no one else can see and that are called visual hallucinations. “Seeing things that aren’t there” is very common in people with problems seeing well. Deafblind people “see things that …